Data sharing

Archive
VSS Keith McNeil (3)
24 July 2020

Australia and Covid-19: High quality data vital to ‘understand and cope’

Professor Keith McNeil, CCIO of Queensland Health, said the Covid-19 pandemic has highlighted the “power of sharing information”.
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27 April 2020

Failure of NHS to share Covid-19 data ‘exasperating’, council chief says

Councils are struggling to access lists of “shielded” patients despite Cabinet Office rules stating they should have access, a council
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12 February 2020

Data strategies must be designed around patient input, report finds

Patients must feel a sense of agency and control over what happens to their data and health data must always
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11 February 2020

Patient data sent to global drug companies ‘may not be anonymous’

Patients whose medical information is of particular interest to international companies have already been identified, senior NHS officials claimed.
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31 January 2020

What happens to data sharing agreements with the EU after Brexit?

Following Brexit the UK will enter into a transition period until 31 December 2020, during which future data sharing agreements
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6 January 2020

Health Data Research UK launches £1m data science partnership

The partnership will use continuous improvement methods to integrate clinical practice, large scale health data and advanced analytics to improve
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19 December 2019

NHS ‘risks repeat of care.data in talks to commercialise medical records’

Secretive NHS talks to discuss the potential to commercialise 65 million patients' records risked jeopardising patient trust, Professor Joe McDonald
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Amazon Alexa
11 December 2019

Privacy organisation raises concerns over NHS and Amazon deal

The information could allow the multi-billion-pound tech company to make, advertise and sell their own products based on what it's
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6 December 2019

Digital Healthcare Council outlines four principles for a sustainable industry

Digital health solutions should consider people first; fair system rules; free and open information; and evidence-based practice, the council said.
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5 December 2019

Putting trust at the heart of (patient) personal data

Finn Raben, director general at ESOMAR, explores why trust needs to be at the heart of data sharing agreements in
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